<?xml version='1.0' encoding='UTF-8'?><?xml-stylesheet href="http://www.blogger.com/styles/atom.css" type="text/css"?><feed xmlns='http://www.w3.org/2005/Atom' xmlns:openSearch='http://a9.com/-/spec/opensearchrss/1.0/'><id>tag:blogger.com,1999:blog-1269459195988081410.comments</id><updated>2011-02-03T06:58:20.240-08:00</updated><category term='hbot'/><category term='shunt'/><category term='seizures'/><category term='baclofen'/><category term='discipline'/><category term='cerebral palsy'/><category term='eating'/><category term='brain hemorrhage'/><category term='polite'/><category term='EEG'/><category term='hydrocephalus'/><category term='prescriptions'/><category term='wrong dose'/><category term='medications'/><category term='phenobarbital'/><category term='sassy'/><category term='thank you'/><title type='text'>MyHeroJailen</title><link rel='http://schemas.google.com/g/2005#feed' type='application/atom+xml' href='http://myherojailen.blogspot.com/feeds/comments/default'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1269459195988081410/comments/default'/><link rel='alternate' type='text/html' href='http://myherojailen.blogspot.com/'/><link rel='hub' href='http://pubsubhubbub.appspot.com/'/><author><name>Jailen's Mom :)</name><uri>http://www.blogger.com/profile/03434444655123549967</uri><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='24' src='http://1.bp.blogspot.com/_-D2MNZyGA10/S2pQ7-jlk3I/AAAAAAAAAAM/2cMkUZIl9ys/S220/04282009+028.JPG'/></author><generator version='7.00' uri='http://www.blogger.com'>Blogger</generator><openSearch:totalResults>9</openSearch:totalResults><openSearch:startIndex>1</openSearch:startIndex><openSearch:itemsPerPage>25</openSearch:itemsPerPage><entry><id>tag:blogger.com,1999:blog-1269459195988081410.post-6535044098349607813</id><published>2011-02-03T06:58:20.240-08:00</published><updated>2011-02-03T06:58:20.240-08:00</updated><title type='text'>Wow! Did you have to make me cry?!?! haha Thank yo...</title><content type='html'>Wow! Did you have to make me cry?!?! haha Thank you, Misty! You are too sweet to me.</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1269459195988081410/3335147381885603337/comments/default/6535044098349607813'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1269459195988081410/3335147381885603337/comments/default/6535044098349607813'/><link rel='alternate' type='text/html' href='http://myherojailen.blogspot.com/2011/02/fun-part.html?showComment=1296745100240#c6535044098349607813' title=''/><author><name>Jailen's Mom :)</name><uri>http://www.blogger.com/profile/03434444655123549967</uri><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='24' src='http://1.bp.blogspot.com/_-D2MNZyGA10/S2pQ7-jlk3I/AAAAAAAAAAM/2cMkUZIl9ys/S220/04282009+028.JPG'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://myherojailen.blogspot.com/2011/02/fun-part.html' ref='tag:blogger.com,1999:blog-1269459195988081410.post-3335147381885603337' source='http://www.blogger.com/feeds/1269459195988081410/posts/default/3335147381885603337' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-1712486164'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.displayTime' value='February 3, 2011 6:58 AM'/></entry><entry><id>tag:blogger.com,1999:blog-1269459195988081410.post-5283125795480096087</id><published>2011-02-01T11:49:52.612-08:00</published><updated>2011-02-01T11:49:52.612-08:00</updated><title type='text'>Jessica,
  This is an awesome site and I&amp;#39;m sur...</title><content type='html'>Jessica,&lt;br /&gt;  This is an awesome site and I&amp;#39;m sure others will appreciate and love the stories just as much as I do. I&amp;#39;ve known you since you were probably about 6 or 7 and I must say you have grown into a beautiful person and one awesome mom. Your children are blessed to have you as there mom and the smiles on their faces prove that daily. They are two of the sweetest, happiest and well mannered children I&amp;#39;ve met. You are doing an awesome job...   &lt;br /&gt;&lt;br /&gt;Misty Lopez</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1269459195988081410/3335147381885603337/comments/default/5283125795480096087'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1269459195988081410/3335147381885603337/comments/default/5283125795480096087'/><link rel='alternate' type='text/html' href='http://myherojailen.blogspot.com/2011/02/fun-part.html?showComment=1296589792612#c5283125795480096087' title=''/><author><name>Anonymous</name><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img1.blogblog.com/img/blank.gif'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://myherojailen.blogspot.com/2011/02/fun-part.html' ref='tag:blogger.com,1999:blog-1269459195988081410.post-3335147381885603337' source='http://www.blogger.com/feeds/1269459195988081410/posts/default/3335147381885603337' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-1782567740'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.displayTime' value='February 1, 2011 11:49 AM'/></entry><entry><id>tag:blogger.com,1999:blog-1269459195988081410.post-9174422586397217190</id><published>2011-01-25T19:27:56.102-08:00</published><updated>2011-01-25T19:27:56.102-08:00</updated><title type='text'>Well, Jessica, he does have two more nine weeks in...</title><content type='html'>Well, Jessica, he does have two more nine weeks in Kindergarten. I would ask if he could have a modified curriculum. I&amp;#39;d try shorter assignments. Do they test yet? I&amp;#39;d to tests with only one or two answers. The teacher shouldn&amp;#39;t have to adapt her teaching--the aide should be helping with that. The teacher CAN be asked to modify the work load. Another possibility would be for Jailen to work on assignments longer, but have fewer. For example, he could do A says a with his peers, keep working on that and skip B, and then rejoin them on C. &lt;br /&gt;&lt;br /&gt;I think I&amp;#39;m frustrated because these are not new concepts. I was doing this stuff in Arkansas about four years ago, and let&amp;#39;s face it, Arkansas isn&amp;#39;t exactly forward-thinking. I was doing it Texas seven years ago. I hate to think that when Charlie comes up they&amp;#39;ll probably try to send him somewhere else as well. I shouldn&amp;#39;t have to fight for stuff that is SO incredibly basic.</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1269459195988081410/4805162904462723497/comments/default/9174422586397217190'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1269459195988081410/4805162904462723497/comments/default/9174422586397217190'/><link rel='alternate' type='text/html' href='http://myherojailen.blogspot.com/2011/01/heart-breaking-acceptance.html?showComment=1296012476102#c9174422586397217190' title=''/><author><name>Katy</name><uri>http://www.blogger.com/profile/02189007616883663434</uri><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_wVljRHG-4tY/Skz-S5WiFjI/AAAAAAAABEk/BBwBhcHXGig/S220/067.JPG'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://myherojailen.blogspot.com/2011/01/heart-breaking-acceptance.html' ref='tag:blogger.com,1999:blog-1269459195988081410.post-4805162904462723497' source='http://www.blogger.com/feeds/1269459195988081410/posts/default/4805162904462723497' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-1126260206'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.displayTime' value='January 25, 2011 7:27 PM'/></entry><entry><id>tag:blogger.com,1999:blog-1269459195988081410.post-149977732365388408</id><published>2011-01-25T18:56:51.854-08:00</published><updated>2011-01-25T18:56:51.854-08:00</updated><title type='text'>Jessica,
I&amp;#39;m reading your blog for the first t...</title><content type='html'>Jessica,&lt;br /&gt;I&amp;#39;m reading your blog for the first time and I&amp;#39;m so impressed with your strength. I admire your pressing forward to help Jailen succeed in school. I can see how brokenhearted you are, but also how you are open to other opportunities. As with all things, sometimes doors are shut for a reason, and maybe there is somewhere else for Jailen to flourish. I will be praying for you and Jailen as you start a new journey. I truly admire your strength and wish the best for both of you. &lt;br /&gt;Jill</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1269459195988081410/4805162904462723497/comments/default/149977732365388408'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1269459195988081410/4805162904462723497/comments/default/149977732365388408'/><link rel='alternate' type='text/html' href='http://myherojailen.blogspot.com/2011/01/heart-breaking-acceptance.html?showComment=1296010611854#c149977732365388408' title=''/><author><name>Jill Sharp</name><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img1.blogblog.com/img/blank.gif'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://myherojailen.blogspot.com/2011/01/heart-breaking-acceptance.html' ref='tag:blogger.com,1999:blog-1269459195988081410.post-4805162904462723497' source='http://www.blogger.com/feeds/1269459195988081410/posts/default/4805162904462723497' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-18903731'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.displayTime' value='January 25, 2011 6:56 PM'/></entry><entry><id>tag:blogger.com,1999:blog-1269459195988081410.post-7868141828270882106</id><published>2011-01-25T18:20:43.051-08:00</published><updated>2011-01-25T18:20:43.051-08:00</updated><title type='text'>You&amp;#39;ll be able to make it work for Charlie bec...</title><content type='html'>You&amp;#39;ll be able to make it work for Charlie because you live right there &amp;amp; they do have to accomodate him. I&amp;#39;ve moved, though, so I feel like there&amp;#39;s not much I can say about it now. If we still lived there, they would most definitely have to accomodate Jailen, but we don&amp;#39;t. The recommendation was Kindergarten from the time school starts til lunch, then PEI. He does have an aide with him in the Kindergarten class. Not sure what her role is. Curriculum/grading hasn&amp;#39;t been modified. This is a battle I lost when I moved out of the district I guess. I&amp;#39;ve always wanted him included in the regular class for most of the day, but he&amp;#39;s not keeping up. And I know of other mom&amp;#39;s who have made them change things to adapt the class to that particular child, but I can&amp;#39;t see them slowing down the teaching of all the other kids just for one. Even if he is mine. I&amp;#39;m letting this slide as is. Once we find a different school, if they don&amp;#39;t want to include Jailen in regular classes, then I might need to know your secrets! Btw, I do NOT mind your questions AT ALL!!</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1269459195988081410/4805162904462723497/comments/default/7868141828270882106'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1269459195988081410/4805162904462723497/comments/default/7868141828270882106'/><link rel='alternate' type='text/html' href='http://myherojailen.blogspot.com/2011/01/heart-breaking-acceptance.html?showComment=1296008443051#c7868141828270882106' title=''/><author><name>Jailen's Mom :)</name><uri>http://www.blogger.com/profile/03434444655123549967</uri><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='24' src='http://1.bp.blogspot.com/_-D2MNZyGA10/S2pQ7-jlk3I/AAAAAAAAAAM/2cMkUZIl9ys/S220/04282009+028.JPG'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://myherojailen.blogspot.com/2011/01/heart-breaking-acceptance.html' ref='tag:blogger.com,1999:blog-1269459195988081410.post-4805162904462723497' source='http://www.blogger.com/feeds/1269459195988081410/posts/default/4805162904462723497' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-1712486164'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.displayTime' value='January 25, 2011 6:20 PM'/></entry><entry><id>tag:blogger.com,1999:blog-1269459195988081410.post-8919068463872332214</id><published>2011-01-25T18:10:30.017-08:00</published><updated>2011-01-25T18:10:30.017-08:00</updated><title type='text'>Jessica:
   I hate to read this. I really do. I wi...</title><content type='html'>Jessica:&lt;br /&gt;   I hate to read this. I really do. I wish Jailen was in the same grade as Charlie because I&amp;#39;d be down there trying to work something out. I mean, they might not want to hear this, but Charlie is not changing schools. I didn&amp;#39;t buy a house four blocks from school just to send my kid somewhere else. &lt;br /&gt;&lt;br /&gt;I&amp;#39;m wondering what their recommendation is for Jailen? Is it 100% of the day in special education? That would be my primary focus--amount of time in special ed. Also, does he currently have an aide helping him in Kindergarten? What is her role? Have they tried keeping him with the regular class and modifying either the curriculum or the grading requirements? I&amp;#39;m sorry, I know I&amp;#39;m being obnoxious with all the questions--this just hits a sore spot with me and as a former SPED teacher, I&amp;#39;m very aware of all the different types of services that CAN be administered.</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1269459195988081410/4805162904462723497/comments/default/8919068463872332214'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1269459195988081410/4805162904462723497/comments/default/8919068463872332214'/><link rel='alternate' type='text/html' href='http://myherojailen.blogspot.com/2011/01/heart-breaking-acceptance.html?showComment=1296007830017#c8919068463872332214' title=''/><author><name>Katy</name><uri>http://www.blogger.com/profile/02189007616883663434</uri><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_wVljRHG-4tY/Skz-S5WiFjI/AAAAAAAABEk/BBwBhcHXGig/S220/067.JPG'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://myherojailen.blogspot.com/2011/01/heart-breaking-acceptance.html' ref='tag:blogger.com,1999:blog-1269459195988081410.post-4805162904462723497' source='http://www.blogger.com/feeds/1269459195988081410/posts/default/4805162904462723497' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-1126260206'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.displayTime' value='January 25, 2011 6:10 PM'/></entry><entry><id>tag:blogger.com,1999:blog-1269459195988081410.post-1432993826530252055</id><published>2010-02-17T21:29:41.040-08:00</published><updated>2010-02-17T21:29:41.040-08:00</updated><title type='text'>I know what you mean, it&amp;#39;s so hard to let go a...</title><content type='html'>I know what you mean, it&amp;#39;s so hard to let go and realize that they are older and more capable and can do things for themselves!  Awareness is half the battle so you are halfway there!  That&amp;#39;s awesome that he WANTS to do things for himself and that he CAN!  Way to go Jailen!</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1269459195988081410/874341470473433770/comments/default/1432993826530252055'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1269459195988081410/874341470473433770/comments/default/1432993826530252055'/><link rel='alternate' type='text/html' href='http://myherojailen.blogspot.com/2010/02/hectic-life.html?showComment=1266470981040#c1432993826530252055' title=''/><author><name>PrayforNathan.org</name><uri>http://www.blogger.com/profile/12226373977189001664</uri><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img2.blogblog.com/img/b16-rounded.gif'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://myherojailen.blogspot.com/2010/02/hectic-life.html' ref='tag:blogger.com,1999:blog-1269459195988081410.post-874341470473433770' source='http://www.blogger.com/feeds/1269459195988081410/posts/default/874341470473433770' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-1135748656'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.displayTime' value='February 17, 2010 9:29 PM'/></entry><entry><id>tag:blogger.com,1999:blog-1269459195988081410.post-7461998916646213174</id><published>2010-02-09T13:39:37.942-08:00</published><updated>2010-02-09T13:39:37.942-08:00</updated><title type='text'>Hi!  Just wanted to say thanks for introducing you...</title><content type='html'>Hi!  Just wanted to say thanks for introducing your self on my blog. Nice to meet you and Jailen.</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1269459195988081410/7330819269760432842/comments/default/7461998916646213174'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1269459195988081410/7330819269760432842/comments/default/7461998916646213174'/><link rel='alternate' type='text/html' href='http://myherojailen.blogspot.com/2010/02/jailen-enjoys-football-too.html?showComment=1265751577942#c7461998916646213174' title=''/><author><name>Katy</name><uri>http://www.blogger.com/profile/02189007616883663434</uri><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://4.bp.blogspot.com/_wVljRHG-4tY/Skz-S5WiFjI/AAAAAAAABEk/BBwBhcHXGig/S220/067.JPG'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://myherojailen.blogspot.com/2010/02/jailen-enjoys-football-too.html' ref='tag:blogger.com,1999:blog-1269459195988081410.post-7330819269760432842' source='http://www.blogger.com/feeds/1269459195988081410/posts/default/7330819269760432842' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-1126260206'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.displayTime' value='February 9, 2010 1:39 PM'/></entry><entry><id>tag:blogger.com,1999:blog-1269459195988081410.post-3852241639929504692</id><published>2010-02-05T11:30:21.573-08:00</published><updated>2010-02-05T11:30:21.573-08:00</updated><title type='text'>Jessica, wow, I love how you were able to turn aro...</title><content type='html'>Jessica, wow, I love how you were able to turn around a potentially difficult situation!  Go girl!  I&amp;#39;m so with you on viewing things from a positive perspective and if Jailen is happy and improving, that&amp;#39;s all that matters!  I am glad we share the same perspective about our boys - enjoying them to the max.  They are wonderful gifts.  I&amp;#39;ve added your blog to my RSS reader and will continue following your journey!!!</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1269459195988081410/8626518826196577507/comments/default/3852241639929504692'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1269459195988081410/8626518826196577507/comments/default/3852241639929504692'/><link rel='alternate' type='text/html' href='http://myherojailen.blogspot.com/2010/02/another-eeg-mom-can-hope.html?showComment=1265398221573#c3852241639929504692' title=''/><author><name>PrayforNathan.org</name><uri>http://www.blogger.com/profile/12226373977189001664</uri><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img2.blogblog.com/img/b16-rounded.gif'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://myherojailen.blogspot.com/2010/02/another-eeg-mom-can-hope.html' ref='tag:blogger.com,1999:blog-1269459195988081410.post-8626518826196577507' source='http://www.blogger.com/feeds/1269459195988081410/posts/default/8626518826196577507' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-1135748656'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.displayTime' value='February 5, 2010 11:30 AM'/></entry></feed>
